EB Home
EB Home
EB Home

About the EB Home Institute

EB Home, the sole support institution for EB patients in Iran, a non-profit and non-political organization is a registered NGO and has been trying to identify and cover EB patients in iran, and on this path, humanitarian aid of the people of iran has always been our most important backing. EB home began its work in 2015 and in 2017, was registered as an independent NGO.
Due to the unknown status of butterfly disease in the country, EB Home activity has focused on informing, introducing the disease, describing the extent of its complications, and providing medical support, and with the involvement of social media  has been able to increase the sensitivity of society and authorities to this disease.

Understanding EB

Epidermolysis Bullosa (EB) is a rare genetic disease characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor mechanical friction or trauma. This condition is not contagious.

An estimated 1 out of every 50,000 live births are affected with some type of EB in the world. The disorder occurs in every racial and ethnic group throughout the world and affects both sexes equally...

News and Articles

Facebook posts

3 months ago

Eb_home

End the sanctions against butterfly patients
Due to selfish rules, 15 butterfly patients lost their lives in the absence of special bandage.
This is a human order; end sanctions against butterfly patients.
#EB_patients #EB_disease #Butterflies_children #Iran
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View on Facebook

3 months ago

Eb_home

🏡 Welcome to Ismail’s dream (from the bathroom to the house).
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💭 Ishmael has a small wish. Are you ready to give us a hand to fulfill Ismail’s small wish?
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🙌 So let’s pitch in. We all know that the bathroom is not a place to live, but all of Ismail’s childhood was spent in a dark and cold bathroom. Currently, the only asset of the Ismail family is a piece of land, and if we shake hands, Ismail’s dream comes to true and he will go home from the bathroom simply and beautifully. .
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💌Let’s convince Ishmael that after every hardship, there is an opening and an easy path. Are you ready to put the bricks of Ismail’s house one by one on top of each other? .
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🤝So, by participating in the campaign and donating, you fulfill Ismail’s dream.
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📱Participate in Ismail’s campaign by clicking on link in the bio
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#EB_patients #EB_children
#eb_disease #butterflies_children
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View on Facebook

3 months ago

Eb_home

When was the last time you injured your hands?
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Probably, your hands have been injured by yourself for the last time?
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But did you know that butterfly patients have scars and blisters from the moment they were born?
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This is the most painful pain you've never heard of.
But we tell you the story of this disease
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We tell you the butterfly patients' stories in Iran!
Ready?
#butterfly_children #eb_patient #ebhome_iran
#eb_disease #eb_home
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View on Facebook

3 months ago

Eb_home

It is true that EB disease is an incurable disease, and medical science has not been able to open the cure for it yet, but it cannot be denied the wound care.
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EB patients need to take care of their wounds with a special bandage called Maplex .
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These bandages cover the wounds and blisters to prevent the wounds stick to the cloths less, further , it prevents them from infection.
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The bad news is that, unfortunately, for a while, these bandages is not imported due to US sanctions against Iran, and have made the butterfly patients ' conditions extremely painful than before .
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But with all this , we are not disappointed. We hope for good days. The days when the sanctions will be lifted against the butterflies . On the day that the butterflies sleep comfortably at night and wake up with less pain
#EB_patients
#Iran
#Sanction
#Iran_EB_home
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Instagram posts
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Your support improves the quality of life for thousands living with EB; it helps us provide free bandages to EB patients