About the EB Home Institute
EB Home, the sole support institution for EB patients in Iran, a non-profit and non-political organization is a registered NGO and has been trying to identify and cover EB patients in iran, and on this path, humanitarian aid of the people of iran has always been our most important backing. EB home began its work in 2015 and in 2017, was registered as an independent NGO.
Due to the unknown status of butterfly disease in the country, EB Home activity has focused on informing, introducing the disease, describing the extent of its complications, and providing medical support, and with the involvement of social media has been able to increase the sensitivity of society and authorities to this disease.
Epidermolysis Bullosa (EB) is a rare genetic disease characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor mechanical friction or trauma. This condition is not contagious.
An estimated 1 out of every 50,000 live births are affected with some type of EB in the world. The disorder occurs in every racial and ethnic group throughout the world and affects both sexes equally...
News and Articles
Ava’s death is a death to humanity – “End economic genocide”
A Malaysian human rights organization said on Saturday that Ava and other butterfly children’s death due to US sanctions on Iran amoun
US sanctions aimed at collective punishment of Iranians and Death of Iranian Butterfly Patients: Envoy
The Iranian ambassador to the United Nations lambasted US sanctions against ordinary people as well as different sectors of the Iranian econ
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