About the EB Home Institute
EB Home, the sole support institution for EB patients in Iran, a non-profit and non-political organization is a registered NGO and has been trying to identify and cover EB patients in iran, and on this path, humanitarian aid of the people of iran has always been our most important backing. EB home began its work in 2015 and in 2017, was registered as an independent NGO.
Due to the unknown status of butterfly disease in the country, EB Home activity has focused on informing, introducing the disease, describing the extent of its complications, and providing medical support, and with the involvement of social media has been able to increase the sensitivity of society and authorities to this disease.
Epidermolysis Bullosa (EB) is a rare genetic disease characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor mechanical friction or trauma. This condition is not contagious.
An estimated 1 out of every 50,000 live births are affected with some type of EB in the world. The disorder occurs in every racial and ethnic group throughout the world and affects both sexes equally...
News and Articles
Epidermolysis Bullosa (EB) Home service at the time of Corona Virus (Covid 19) outbreak
Covid 19 started in Iran in early March and affected most Iranian cities. Due to the widespread pandemic of this non-contagious disease and
Fear of affecting EB is the most unrealistic and imaginative fear you can have afraid
Do you agree that the fear of the shadows on the wall is the common fear of all people in childhood? What imaginary creatures were created w
Butterflies speak about their needs. listen to their words with your heart
Dressing, bathing, blistering and burning These words, which are hard for us to even read, are the most widely used words for a #butterfly p